Hi there kittens!
It’s Tuesday. I’ve made five days of work so far. Woo hoo. I even manage to get through an intake, complete with the funnest amount of paperwork EVER! I can’t wait til next week!
I know, I know, my joy is infectious. Which is surprising because my hair started to fall out yesterday when I was busy showering for work and believed that I had been attached either by leeches or wet black snakes all over my body. Turns out it was just chunks of hair. You really can’t notice yet, and I am hoping it stays that way until at least Friday night, because if it lasts that long, I am having Andy shave the sides and I am gonna rock a mohawk this weekend. There’s definitely not enough left for liberty spikes, but hopefully I can get a really wicked mohawk going this weekend. Maybe I’ll even color it with some kool-aid for old time’s sake. This will probably be the last time I will ever dare a mohawk, so mark your calendars.
Much discussion was had yesterday about the impending loss of eyebrows as well – if you have followed this blog from the beginning, or if you know anything about hair loss from chemo – you will know that you lose ALL your hair. Legs, arms, pubes, eyelashes and eyebrows along with the hair on your head. I don’t mind the legs at all. Having no eyelashes is odd, but no eyebrows weirds me out too. I didn’t do anything last time about them, but I am going to this time. I don’t want to draw them on, because that just doesn’t work for me, but I might glue some on, or maybe crochet some, or use fuzzy fake caterpillars. Think of the fun when I drop one on the floor at work…EEK caterpillar! Nope, just an eyebrow. Think of all the things I can put above my eyes in lieu of eyebrows. Plastic farm animals. Spaghetti, cooked of course. Orange slices. Gummy worms. Duct tape. They can also come is different shapes – like a big V between my eyes to scare people. Or just one raised eyebrow. Or I can attach them to my glasses. For a change of pace, I can attach them to the back of my head, just to keep it interesting. It will be nice not to wake up with a mouth full of hair in the morning, or have to drag the nest of hair out of the drain. It takes at least 5 minutes off the time it takes for me to get ready in the morning.
In less exciting news, I found out that in my quest to make sure I had mid-length disability insurance I elect for the coverage that would last until I was seventy. Unfortunately, that means I need 90 unpaid days before it will kick in, instead of 15. FML. I am less worried about money than I am keeping my health insurance – if I were to lose that, I’d really be fucked. I am blessed with excellent health care coverage. But you know me, ever the pluck entrepreneur, I’ve got some stuff to make and sell if I find myself really desperate for cash. And no, I don’t mean my painkillers. Or Meth. Speaking of making things, last time I lost my hair, I made fancy little hair animal sculptures for those who so desired them – I hate to waste perfectly good hair. So if you would like a rabbit, or a puppy, or perhaps a lemur (they are all gonna look the same, I will just give them exotic animal names for your enjoyment) leave me a comment on this here blog, and one can be yours, gratis. I will even mail these special trinkets for those of you who may live on the favored coast, if you find you can’t live with out one. The one thing I am a touch negative about is, that when my hair comes back, it comes back curly, and I hate looking like one of the hair bear bunch (see below)
I took a brief interlude to do some eyebrow research and as you can see there are a lot of creative options. I did not know, but wasn’t surprised to find out, you can also buy stick on eyebrows made with hair, for that realistic look. I am pretty sure I will find a better alternative. Like fur. But for your viewing pleasure, I provide the following collage. I’m quite fond of the black eyes of death. It will give me that Uncle Fester look I so covet.
Also during my little break, I finally checked my blood tests from yesterday to see what’s what. My CA-125 marker is lower than earlier this month, which is good, but still not in the normal range, but I will take what I can get. Other levels are lower than last time, and lower in a not so good way, which means I will either get a bag full of liquid vitamins and stuff at chemo, or, the dreaded neulasta shot. Let’s just hope I can get them up a little with better food choices by next Monday. It’s amazing what the internet can teach you, and while also filling you with dread. Like when I looked up CA 125. It’s the marker in your blood for ovarian/endometrial cancer. It was only slightly elevated in this test – two weeks ago is was about 10 points higher. Which means the chemo seems to be doing its job. Well, of course it is, my hair is falling out and I am tired as shit. Until this month, I didn’t know what a CA 125 marker was. I didn’t what a lot of things on my blood test meant. Now, I know – and believe me, I could have gotten through life without having to know, ever. But I do, and I imagine, am wiser for it.
I am trying to get back to healthy eating once again – I had made the most beautiful taco salad this morning with the other half of the marvelous avocado I had yesterday. I was swinging my bag on the way in to work and out flew the salad. A sad, sorrowful mass of spring mix, perfect avocado, sweet yellow cherry tomatoes, taco meat and beans all lightly dressed with some sour cream, like a healthy oil slick on the office floor. And since the healthiest of lunches was destroyed, I had to eat cookies for lunch, and a bag of chips for dinner. We’ll try again tomorrow. I’m still a little broken up over it.
Well that’s about it, happy people. Tomorrow is hug it out hump day. I am limiting my hugging lately because, I am not sure if you know this, but people are germy. Like until you have to be careful about being around the infectious, you don’t really think much about germs. Now there are certain people I will conscientiously avoid, because they don’t wash their hands. I constantly use hand sanitizer to the point that I have icky dry patches on my hands. Last thing I need right now is the flu or a cold. I have also manage to get past some of the anxiety issues keeping me up at night. I slept a solid six hours last night. Go me! I’m going for the big six again tonight…so I must bid you all most pleasant dreams and restful slumbers. I’m hoping for a snow delay in the morning – it’s unlikely, but a girl can dream. And let me know about those hair sculptures. Peace, lovelies.
21 January 15 | Categories: c-monster, Philosophizings, Picture Perfect, Profound Insights | Tags: anxiety, bald, cancer, carnivorous kangaroo, chemo, chemotherapy, cyst, flying monkeys, food, funny, happiness, hats, hope, humor, insight, sick, side effects, sleep, squirrels, surgery, tumor | 1 Comment
If you woke up to birds singing and cuddles and happiness, click that X in the top right corner and get the fuck out of here now. I’ll give you a few seconds to escape.
Still here? Well I am not responsible for how you feel all day if you read this. I’m giving you fair warning.
Okay, fine, the choice is yours, but you will be sorry. I am, and I am writing the shit.
I started having panic attacks yesterday. Serious sobbing, full on snot slinging, not enough tissues in this fucking box, I can’t catch my breath panic attacks. I am still having them, on a less severe scale than last night, but isn’t that how horror works? The most terrifying things live in the dark and no amount of light, sunlight, electric, candle, is gonna take the terror out of it.
I am still sick. I want to get the fuck out of this house today, and just go somewhere. Anywhere. No, not anywhere. An ocean – okay, Pacific ocean where my tears can get sucked into the gigantic vastness that oceans are. It seems like it’s been months since I got this news. It’s only five weeks, but it seems like forever. And all at once it seem like it all happened so fast. And here I sit again, with a fucking cancer garden dying deep inside of me. (That’s right you nasty poisonous bastard, you’re dying inside me, because you have no right to be there) It’s so very different this time – last time I was all like, okay stupid cancer, you will be gone in six months. The second time, you’re not so cocky. I mean, I was supposed to have made it past the recurrence window. This little monster sprouted and started taking over in a two month window. I know what my stage is, I know what my odds are, I know that it is definitely possible to win again, but it’s a 1000x more scary the second time. And a second time where they can’t just do in and cut it out like last time. I have to live with it inside, knowing that the only way it’s going anywhere is if the combination of chemo, positive energy and visualization of it vanishing make it go away. Stupid cancer. It takes so much more than your health.
Yeah, I am strong, and brave and have the guts to take this on again. But I am also a tearful mess who is so scared I am not gonna be around to see the way life is supposed to play out. What if I am not to see Andy get married? To see my grandbabies? To see my niece graduate or my nephews get married? I am not afraid of dying. I am afraid of what I’ll miss. What I thought was in my future and what might be so unfairly snatched away from me now. Oh sure, I know you’re thinking, well miss fucking sunshine, that’s not a very positive attitude! You’re right, it’s not, but it’s a very real one. It’s whats’ gnawing at the back of my mind 24 hours a day. Most people are afraid of dying – I’m not. I’m afraid of leaving. I know I will always be connected to the people in my life now, we’re all energy, we all are connected, but I am not done with this life yet. I have plans. I need to retire in Bali, I need to join the Peace Corps, I need to make a half-assed attempt at surfing, I have several more tattoos planned, I need to drive cross country and couch surf a few months on the west coast. I still want to get a PhD, and teach. I am not pleased that my plans are compromised by something completely out of my control. And in my mind, I rehash every doctor visit, every test result, every procedure and I wonder why the fuck I can’t win the lotto, but cancer II? I win that. How could it just show up like that? What did I do wrong? And believe me, I look back over my life, at every less that stellar choice or thought I had over the last several decades, and wonder what I am being punished for? It seems like every questionable thing I have ever done is being returned to me in the form of a nasty little parasite that is eating me up from the inside.
I didn’t even think it was possible for a human body to hold so much snot. Where does it come from? I am so scared this time. I have never been this scared. I feel like a caged animal. The chemo sick is so much harder this time – five days later and I am still tasting metal and not sure whether or not food is going to stay down. I am out of effexor – this is probably part of my non-stop panic attacks, I know I have a prescription bottle in this house somewhere that’s half full, but I can’t bend over to look for it, because I feel like hurling. Every joint in my body hurts, and motrin, tylenol and percocet are like a roulette wheel to see if one will actually help. I can’t get the weird chemo smell out of my nose, no matter how many bazillion times I blow it. I think my blood is part ginger now. It’s the only thing that keeps me from spending my day huddled over the bathroom sink. I lie down one minute and feel fine, and then in five minutes, my stomach is cramped up so much, that I want to unhinge my jaw and tear my stomach out. And, for comic relief, how about a post-chemo fart? Toxic clouds are less vile. Dick Cheney is less vile. As if you aren’t sick enough already, your body attempts to suffocate you in a noxious cloud at random points throughout the day.
At least the crying has slowed down. Blood tests tomorrow. Woo hoo. And I have two more weeks before I have to go through this nastiness again. I really feel for that 17 year old girl who wants to refuse her chemo – how is it more compassionate to put her through this when it’s not what she wants. I’ve already had the conversation about quality of life vs. quantity with Andy and my brothers – if it ever gets to that point, I’m cashing in my retirement, buying a surfboard, renting a car and driving to California, buying as many edibles as I can eat without freaking out in paranoia, paddling out and waiting for a great white to eat me after it mistakes me for an elephant seal. I am not dying in a hospital, all weak and sickly, it’s gonna be on my terms. Morbid, yes, but when have I truly not been? Really, I continue to watch Meet The Press, and I know how that’s gonna end every week, and yet I go back.
So next time you want to tell me how brave I am, or how strong, just remember that I am also a very scared and tearful little girl, wishing someone would save me from this monster. Facing this a second time is not about a fight, it’s about getting up everyday and doing what I have to keep from being paralyzed with fear. When I smile, it’s because I can’t rub my nose anymore or the skin is going to come off. When I make jokes, it’s because I’m scared and I need to find a way to cope. I’m gonna keep coping – I have to – it’s not time to give up. I’m not a survivor – that’s a fucking stupid word. I’m a person who has a fucking obstacle ahead – I may not overcome it, but I’m still gonna try. I’m also smart enough to know if at some point I have X years or months left, I’m not gonna waste that precious time trying to give me 10 extra sickly days, when I can have 5 days of fun. Look out Disneyland if that happens. Or Ireland. Or Bali. Or all three, and Peru.
You were warned to not read this. If you’re crying or horrified, that’s on you, not me. This is my blog. I have to face this shit down daily, and this is my process. This is how I sort through the rapid firing shit in my head that just won’t stop. You only have to read this once, and never again. I’ll be the one having a breakdown during Fairly Oddparents or Iron Man 3. I can’t promise that I won’t be maudlin or dramatic in the future either, but I can promise that I’ll do what I need to do to get through today, and tomorrow. Like my friend Debbie reminded me, these are the real feelings, these are what people with monsters inside them really do feel, and it’s ok. OMG, where is this fucking snot coming from???? It has to stop sometime!!
So that’s that. I’m gonna try to slog down another ginger tea. And check to see if my prescriptions are ready. And maybe take a drive. It’s a beautiful gloomy day out there, and if I can unswell my eyes, maybe I’ll go hang out among the dead for a few hours with my camera. Or do laundry. The mundane shit goes on, even when you’re having a meltdown.
Enjoy your Sunday, mes jolis canards aperçus! (use your google translate if you must know)
PS. To all of you wonderful friends, who call/text/message me to see if I need anything, thank you. Mostly I don’t need anything – I don’t really eat much lately but these are things that I always can use: Fresh turmeric root, Ginger-Honey Crystals, Reed’s Ginger Brew – Regular, Premium, or especially, Extra Ginger, Ginger Ice Cream, Anti-Viral Tissues, and bottled water – but not Arcadia or whatever the store brand at Boyer’s is – I don’t care what people say, water has different tastes depending on where it comes from. And sesame crackers. My food tastes are really different this time, and what I am hungry for can change hour to hour. If you are worried about Andy starving, don’t be, but if you insist on feeding him, there’s nothing the boy won’t eat except mushrooms. Well, he’ll even eat certain types of those, but he also gets random drug tests at work, so no thank you.
11 January 15 | Categories: c-monster, Philosophizings, Profound Insights, Random Rambling | Tags: anxiety, blackness, blood, cancer, chemo, chemotherapy, cyst, death, depression, diagnosis, disease, doctors, dying, endometrial cancer, family, fear, flying monkeys, food, ginger, hope, insight, malignancy, ocean, pain, panic, plans, procedure, sick, surgery, survival, toast, treatment, turmeric, uterine cancer | 3 Comments
First, I apologize. I’ve been lax about my blog. Not because I haven’t had anything to write, because I have, but like so many other people who write or draw or do creative things, occasionally you feel like you are boring your audience (even when your intended audience is yourself) and you can’t get excited about things as you used too. I’d blame depression, but for me, depression is often the one time I want to write because I don’t want to keep that chaos bottled up in my brain case. I didn’t want to bore anyone with my incessant whining. However humorous it often is. So I’ll recap, and then end with the current quagmire.
Picture it, Shenandoah in mid-July, 2014. We’re headed off to have the pufferfish poked and prodded and punctured and badness sucked from it’s soul. The day after the procedure I am stunned by the relief that comes after pufferfish is defeated. I revel in the painless days and nights – I don’t even touch the percocet or the Advil or the Tylenol. There’s no need – I am happy to frolic about without even an inkling of pain. I can eat with reckless abandon, and I do, nom nom nom, like a non-stop Miss Pac-man gobbling anything in sight. Yeah, yeah, I gain a few pounds, but hey, my body is functioning normally again. I am happy. My two year cancer free anniversary comes and goes, with nary a second thought because I am blissfully not being tortured by my body. I go to my one year radiology check, and gush at Dr. J about how not in pain I am. I do things like swim. Ahh, life is good.
At least it was. For a while.
About four weeks later, I start to notice subtle changes in the way my bladder is acting. I harken back to the days of pre-pufferfish-puncture and suspect that it may be returning. I try to pretend it’s not, I mean, hey, I’m not in pain. Changes keep happening, and I feel something pushing itself about in the great darkness. I’m pretty sure stupid fucking pufferfish is back, but hey, there’s still no pain, so perhaps I am just projecting the imaginary growth of a giant grapefruit sized squishy mass in the darkness of uterus-used-to-be land. Then, without warning, one Friday morning, at the hour of 4:30am, I awake in screeching agony. Welcome back pain, we’ve been waiting. I rock back and forth in bed, stuffing Advil into my mouth in between sobs, cursing the fact that I should have already called the Dr. After about, oh I don’t know, maybe 15-16 Advil, I am able to move without the shriek of a banshee. I head to work.
I should have called the Dr that day, but I didn’t. It could have just been a fluke. I would have preferred a fluke inside me instead of the pufferfish. I thought I should just test my theory. Just one more pain day, and I will call then. I swear it. I don’t know why I didn’t believe my body when it was clearly telling me what I already knew, but hey I never claimed I was the queen of good judgment Although the next two or three day were pain free, my body is never one to disappoint and BAM, pain’s back. Daily. I call the Dr. and in another week, I’m off for another CAT scan. I know what’s going on, but apparently, my word isn’t as convincing as a CT scan. There are still no cats at these scans, which is good because I don’t know if I can refrain from attacking one if I saw it considering the amount of pain I am in. I am eating Advil like it is candy. And there is only ONE, just ONE percocet left from this last prescription. I am saving it for that night when I seriously am weighing the option of self-surgery in which I remove the perpetrator of my pain myself and nail it to the wall. Then I will take it. That night comes pretty quickly and much to my glee, I realize that I have not paid close attention to the stash of narcotics because there are almost two left. There is one tablet, and a half and a quarter from another that I was clearly gnawing on at some time past. It’s an opiate miracle.
Now I am sure I mentioned before that my scans appear in my medical records long before I hear from my medical team. This time is no exception. I can clearly read that gargantuan sea creature has again returned and it trapped behind my bladder and on top of some nerves and is wedging itself snuggly in there to make sure it maximizes the torture experience. Oh, and this radiology student/resident/drwannabe has taken upon himself to decide that my spleen and pancreas are atrophied. What is this new development?!?! Away to Google we must.
Google at the ready, I enter this new information. As Google does, it gives me the most terrifying response one could expect…these are the first signs that the above referenced organs are affected by cancer. I know what pancreatic cancer means and that’s death. So, it’s 7 pm, there’s no Dr available, and I have just read in my CT scan results that I am not only full of the vile fishy torturer but I am facing death. Most of my friends try to talk me down. They know the perils of googling symptoms, but I will not be deterred. I know I am dying. FML. I will acknowledge that being the reader of several of these scan reports that say nothing else is wrong but the bloaty fishy in the past, that perhaps this new scan reader is an arrogant ass who just wanted to find something else the others did not. I agree to not make funeral plans until I hear from my Dr. And the longest 18 hours of my life begins.
Finally my treatment coordinator calls and leaves a message that I will be treated to another delightful out patient visit to radiology to have my friend puffy aspirated. It will be on Tuesday. No, it cannot be on Tuesday. I have training that Tuesday. I call back. We will reschedule, and I am told in no uncertain terms, to stop reading my own CT reports. Don’t worry about the spleen and pancreas until they do it with a contrast dye. And your new date of probing and poking is next Friday. I ask for a new prescription of percocet so if this repeats again, I will be ready – they say it will be ready for me at the procedure. Unfortunately, I am not going to make it without percocet until then, and I call on Tuesday, begging to be able to pick it up. I head to Hershey and retrieve my magical paper. I try to fill it at the hospital pharmacy, but it will take an hour! AN HOUR???? I don’t have an hour…so I take it to another nearby pharmacy and in just 30 minutes I am on my way to sweet fuzzy relief. I get home and sleep the sleep of the blessed poppies. I manage to avoid taking the magical tablets during the workday, but on Thursday night, the throbbing and stabbing are not quieted easily, and I head out for my procedure in drowsy narcotic haze.
Andy drives me to the hospital. I tell him to not even bother coming in with me, because I know the drill and I will just sleep till the designated pufferfish slaying time. He can reappear during my recovery period. I arrive and hop into my hospital bed. I tell the nurse that I had to take percocet before coming to the hospital and that I would like some more. Denied. They will talk to the Dr. and see if they can give me some pain meds during the procedure. The very kind and helpful nurse tells me they usually don’t give any pain meds because it’s not a painful procedure, I’ll just feel pressure. I sweetly tell her that this is my third go-round and I am feeling pain now, a six on the 1-10 scale, and there will be pain during the procedure, pressure is just a nice way of saying it will fucking hurt. I have gone through this twice, I know there will be pain. She assures me she will let the Dr. know this. She tells me I am lucky, Dr. S will be doing my procedure and he’s a great Dr. I am somewhat relieved. I relax as much as a person writhing in pain can until they wheel me into the procedure room. It’s a bait and switch. Dr. S. is there, but he’ll be supervising Dr. G, who will be the gutter of the day. I slide into the CT machine and there, inside the machine is that pufferfish sticker that mocks me every time I am there. I stare him down and mentally tell him he will not defeat me. Another kind nurse discusses what position I should be in, I just tell her how we do it. She promises me some fentynal. I like this nurse.
The procedure begins. I can tell from the start that it is not going as smoothly as the previous two. It feels rougher, less routine. Then I hear, from the twilight of my fentynal/whatever else is in that IV drip the ominous “oops, uh, not, not that, stop, okay” and some more rough movement toward the pufferfish. Yes, I am awake through all of this. I feel everything. The kind nurse with the fentynal asks if I am in pain. Seven I say, I am at seven. She ups the meds, and while it still hurts it’s not as bad. Soon, it’s over without any more issues, and I feel the relief that comes when the beast is defeated. There’s still pain, but it’s a different soreness and not monster eating my spine. And tomorrow I will feel nothing but a little ache. It’s totally worth it.
I hop back onto the hospital bed and get wheeled back to recovery. The nurse there lets me skip out early after Dr. G checks in on me. I told him I felt fine, because well, at that point, besides the achey soreness I did. They drained as much fluid this time as they did the last time. Hopefully this will be the last time I will have to endure this. I spot the cute male nurse from the last time. Hey wait, I’m not ready to go yet…
But I go. Saturday dawns and I’m still pretty sore. No problem, I’ll just stay in bed. Sunday morning and the sun’s shining on me. Still hurting. This is not right. But maybe it’s just because this is the third one. I’ll just wait and see, and sleep some more. Hey whoa, Monday’s here. PAIN. PAIN. What’s this???
Well, I’ll just give it until Wednesday. I mean no reason to jump to conclusions. Tuesday. Ditto with the pain thing. Not happy about this. But it’s SOA night, I’ll just rest. Hello OMFG-what-the-hell-is-wrong-with-me-and-who-replaced-my-hip-bones-with-jagged-razors-broken-glass-rusty-nails-Wednesday? That’s it. We’re calling Radiology. I call off work, I call radiology, Dr. G assures me that it’s a good thing that it’s just this razor pain and no fever, because at least I don’t have an infection. I can’t lift my leg over the bathtub to shower, but hey I won’t die of sepsis. Come on down for another CT scan, and we’ll see what’s up. We get there – I can barely stand up straight. I go down for the scan, they get me in quickly. I enter a new CAT scan room. The first thing I see staring at me is that mean pink bear from Toy Story III. This is a bad omen. It all goes okay until I have to get off the machine bed. I am in blood curdling screaming pain, and I am sobbing. The nurse helps me to the waiting room. After a short wait, a nurse comes in and tells me to call Dr. K., my gyn-oncology. It is not a positive sign that it’s not radiology that wants to talk to me. Now I’m scared.
They gave me a direct line to Dr. K. By the time he gets on the phone, I am crying out in the courtyard like a giant baby, a baby who is can’t sit because I am in so much pain. He tells me there’s a hematoma on my peritoneum from a vein being nicked during the deflation procedure. That’s why I feel like there are razors slicing me to ribbons. He wants to see if it will resolve itself. He is prescribing me a long lasting more powerful pain pill to take with the percocet. I ask if I can work, and he laughs, and says I shouldn’t even be worrying about work with this pain but yes, I can work, if I insist on it, but I should stay home a few days let the pills work. It’s a narcotic damn it. He says if it’s not better by Monday, we’ll figure something out. He doesn’t want to do surgery, not at all, because the pufferfish is in a deep awkward part of the uterine ocean, like the Marianas trench of uterine cavities. It will be a severe major surgery, and it won’t be easy, there are no guarantees that they will even get to it, or that it will resolve it. But we’ll talk in a few days. Take the pills. Rest. I tell him I will send Andy up to pick up the prescription and to tell the nurses to not be afraid to give the 20 something kid with the dreadlocks the powerful morphine prescription because his mom really is in the car. He laughs. I say, “you think I am kidding, I’m not.”
We get the prescription. While it’s getting filled, Andy tells me all the ways we can parlay the pills I am given into cash on the street, enough to supply oil all winter and have cash for a vacation after we sell them, and use that cash to buy some weed which we can sell and get more weed, and then…and then… I tell him they won’t let me have these meds in jail, and to stop making me laugh, because it fucking hurts. I slip one of these beautiful deep blue pearls into my mouth and we head home. Morphine Sulfate XR, bless you, as you cut quickly to the pain and make it just a grit your teeth and whistle level instead of the tearing your fingernails out one by one level. I spend most of the next few days asleep. And then I am told I should not be driving if I am taking the morphine and percocet. So with a note from the Dr. faxed to the office, the soonest I am going back to work is Monday. The next five days are fuzzy, I fall asleep randomly, sometimes with a sandwich in hand, and glasses on, or in the middle of typing a sentence. Sunday I try to wean off the morphine. My body’s response to that? You’re one crazy bitch, that’s not gonna happen. This brings us today – my hematoma is still here, my cyst is back to the size it was before they drained it, I can stay off the percocet, but my pain will not allow us to say no to morphine. And I’m waiting for word from the Dr. on what happens next. He’ll be back in the office tomorrow. The pain is manageable for now. And I keep telling myself at least it’s not cancer. And that I am grateful that at least some of my doctor’s trust me to know my body.
Thus ends the most recent chapter of Cancer, A Gift That Never Stops Giving. I am sorry for this novella, but now you’re on the same page as me, and we can wait, impatiently, together. I am headed to my bed now, to rest quietly and gear up to face tomorrow – I am applying again for FMLA, so that no matter where this is headed, I’ll still have a job to come back to. And this better not interfere with me being able to attend the upcoming adoption of one of my kidlets at work, because then I will be seriously pissed off at this nonsense. I’m not gonna let this noise interfere with the one good thing that comes out of the work I do.
It’s really hard to stay positive with life throwing up road hazards around every turn, but I keep reminding myself, I still wake up every morning and I get out of bed to clean water, and an inside toilet and electricity and food. So I am richer that most of the rest of the world. And I have cookies, so that’s just icing on the cake.
Stay healthy my friends, and keep fighting the good fight.
29 September 14 | Categories: Picture Perfect, Profound Insights, Random Rambling | Tags: amusement, anniversary, annoyances, anxiety, biopsy, buttercup, cancer, carnivorous kangaroo, ct scan, cyst, death, doctors, flying monkeys, happy, hope, insight, life, narcotics, pain, powerpuff girl, procedure, rant | Leave a comment
Some of you know how old I am. And also how I keep it a closely guarded secret. And will continue to do so. Today’s thrilling blog post has to do with time, which is the only reason I bring it up – my birthday is about 4 months away and today I was thinking about where I was last year at this time, and wasn’t all that sure that this year was guaranteed. Yeah, I know nothing ever is. But last July, even though I had gotten the all clear on the cancer front, I didn’t know what the next year would bring. Well it’s a year later, I’m still that effervescent ball of flippin’ sunshine you all know and love – fatter, still tired, still snarky and ready to get on with the business of figuring out what I want to be when I grow up.
I’m really cancer free for one year. Really and truly. I can finally say the words without a niggling thought in the back of my head about not having scans and xrays to back that up. There’s still some little growing glob of something deep in the dark recesses of where the girl bits uses to be, but according to my oncologist, nothing to be alarmed about. And since he was the one who decided the baby sized tumor was cancer even thought Johns Hopkins and an army of other voodoo practitioners seemed to think it wasn’t, he’s got a certain level of credibility in my world. I should get a chip or something like in AA. 365 days cancer free. Or like a sticker or a certificate. Seems I’ve been ripped off. I know I’m not out of the woods yet. I won’t be till I get past that 5 year mark, and even then it could still sneak back for round two, but I’m okay with being one year free. It’s a year that I wasn’t even sure I had in good ol’December 2011, laying in that cushy hospital bed, watching the ol’ flatscreen, sucking down cranberry juice and hitting the button for that morphine shot, all gutted like a giant tuna.
The funny thing is, that everything that has come after has been measured in relation to the fact that I had cancer, chemotherapy and radiation, and most everything is far less traumatic than that. Like tire blows out – so? I had cancer. IRS bugging me about some missing income tax forms – so? I had cancer. That isn’t to say that there haven’t been some serious emotional wrecking balls crashing into my house of sanity lately, namely one nearly 22 yo son. Yet, overall, it’s nothing compared to that 9 months of uncertainty, body poisoning, irradiation, and sickness. It’s all like cake.
And perhaps the most amazing thing that came out of all of it is that I am no longer afraid to die. That does not mean I want to, or plan to anytime soon, but I just don’t care. Somehow in all of this, I have realized that no one really loses anyone when they die, it just changes the type of relationship you have with them, and all this shit that I hoard, it doesn’t matter, because tomorrow I could be dead, and it would all get thrown out anyway. All that matters is right now. Am I happy? Am I grateful? Am I enjoying something or nothing, am I just okay with how things are right now?
Don’t get me wrong – there are lots of things I want to change, improve, dispose of or acquire, but if those things don’t happen, it doesn’t make me any less of a good person, or mean I’m not worthy. It all happens for a reason, and a lesson, and I’ve learned that there’s something good in every damn thing. You just have to willing to find it. And if things don’t happen, then so what, it didn’t happen. Life is always going to have might have dones, could haves, would haves, should haves, and disappointments. My house is a disgusting mess. I don’t have the energy to clean it yet. I have way too much stuff, I suck at managing money, I’m a damn grasshopper in a world of ants, and yet, I have moments when I feel joy so fucking profoundly that I could die in that instant and know I learned exactly what I need to learn in this life. Joy. Laughter. Love. Experience. That’s what it’s all about.
No, I’m not high. I haven’t even had a percocet in days. Andy didn’t make me any tea or feed me mushrooms, or blow smoke in my face. It’s just that I realized that since the worst thing that could possible happen in any situation is that I die, and since I am relatively sure that isn’t about to happen, it’s all good from here.
I was going to write about other things, but I’m feeling pretty happy with this post right now. I’ll save the mundane for tomorrow or next week or whenever. I’m tuckered out from my dr. appt today. And I was attacked by that viciously brutal blood pressure machine in Radiation Oncology that squeezes your arm so tight it feels like your hand it going to explode. That’s enough to send anyone to their bed. So I’m gonna get out my little notebook, write some plans in it, climb into bed and read a bit and then close my eyes and hope I have another one of those hot dreams about Jax Teller. That’s right, it’s less that six weeks to the season premiere of Sons of Anarchy. So nighty night kidlets, I’ll be back sooner than later. I’ve got pictures to post and stories to tell. XO