welcome to the danger zone

Posts tagged “appointment

And On Mondays, We Get Probed.

happy-cancer1

Hi there happy people. I hope you’re happy people. It is Friday after all. That means it’s the weekend, right? I don’t care so much about the weekend anymore since I hardly work these days, but it does mean that people are available to do things, which they typically are not during the week.

So I could tell by the number of new views on my Peckalicious facebook page that people were wondering where the most recent post is. While they share the same name, that page is for shit I make and want to try and sell. When I actually thought I could make a side income from making shit. What I learned is that people want handmade shit for like pennies, unless you claim to be Amish, or “country”neither of which apply to me. So now I just make shit to give people. And beside, having to make things for money kind of kills the joy for me. I do it because I like to; money is nice, but I like the creative process.

If you are a facebook friend, you got the condensed version of the Dr. visit on Monday. I get tired of typing it out again and again, so I usually send a group message after my visit and post a synopsis on Facebook. Sometimes it just seems like it’s redundant – things don’t change much, or there’s waiting for things to change. But before I continue, I’d like to make a request or perhaps, just an comment, to people who frequent doctor’s offices, and particularly those who are only there for a damn blood test: YOU DON’T NEED AN ENTOURAGE. Really, unless this is your first blood test ever, you don’t need to bring your whole family. Even if it is, you don’t need more than one person to hold your hand. And pay attention to the instructions at check in. Just because you didn’t listen to the helpful staff who told you what to do with your purple or yellow folder because you were talking to YOUR FUCKING ENTOURAGE, doesn’t mean that because you sat there with it for an hour and now you realize you were supposed to put it in the bin so they know you are here, that the world should stop and you should be called next. Also, to all the fucking whiners in the waiting room. You have cancer. You are here to see the Dr. Threatening to leave because your name was not called in the 10 minutes since you sat down, (with YOUR FUCKING ENTOURAGE) is gonna hurt no one but you. You should be grateful you have time to wait. I know I would personally prefer being at home on the couch with my medication, but hey, you drove here, you parked the car, and came inside, commit. I’ve rarely been to a Dr. where I have been seen on time. The nature of medicine itself does not cooperate with linear time. Bring your happy face with you. And if you are in a hurry because you made other plans (with YOUR FUCKING ENTOURAGE), then you can cancel the plans, or the reschedule that visit. You and YOUR FUCKING ENTOURAGE took up seven seats in this waiting room. I have to sit out in the hall on a bench, with a sweet grandma and her grandbaby (this is sort of a blessing because the baby is muffling your bitching and moaning). I’m not complaining. I brought a book, and my phone to listen to podcasts. There’s a damn refrigerator with drinks for those of us with cancer. Get a fucking cranberry juice and shut the fuck up. I’d like to clarify that it is usually one or two people complaining, not a large number, but they always have a FUCKING ENTOURAGE and they are always loud. You know this waiting room is small, and there is limited space, but please, make sure that you and your FUCKING ENTOURAGE spread out as much as possible. AND WHATEVER YOU DO, PLEASE MAKE SURE THAT YOU AND YOUR FUCKING ENTOURAGE STOP DEAD RANDOMLY IN FRONT OF PEOPLE WHO ARE WALKING BEHIND YOU. Here’s a tip – if you are just there for a blood test, try showing up in the morning. Early. BEFORE YOUR FUCKING ENTOURAGE GETS UP.

My appointment was at 2. That’s “the get here on time” time. The appointment is really at 2:15PM. I am feeling week and tired, but am having a lovely conversation with the sweet grandma I met who was also a patient of Dr. K, and was scheduled for 2:30. Her grandbaby kept us all amused. I had enjoyed a brownie on my way to the Dr. so I was rather mellow, which I should bring for the whiners and their FUCKING ENTOURAGES, come to think of it. I was finally called around 3:05, which was pretty good for Dr. K, because unless you are one of the first three appointments for the day, you typically wait. No med students today. Just the nurse, Anne, and the Dr. I have no fever, I am not depressed or suicidal, and my blood pressure after a few moments of meditation, is a sweet 124/83. Dr. K and Anne come in, and I tell him about the continued bleeding and my exhaustion and blood craving. I’m not having any pain. He’s super-stoked when I tell him I’ve been off the opiates since Christmas Eve. My herbal medication does that job, although I’d rather have a brownie or some tincture. Dr. K says he’s pretty sure that the pufferfish exploding and continuing to drain is a good thing at present – at least it’s not crushing anything and forcing the intrusion of tubes into my body. I think Dr. K is trying to impress upon me that my experience with tentacles is not forever over because then he starts talking about the possibility of a fistula pushing into my bladder and then requiring double nephrostomies. I remind him that it’s quality over quantity and I’m on a no-invasive-tubes mission. What’s the point of being housebound and miserable in order to extend your life a couple or three months? Better to burn out like a fucking comet. This should come as no surprise is you know me well, even if it makes you uncomfortable. There’s a huge difference between living life and existing.

Anyway, I tell him I want to go to Ireland in April, and I need to know if that’s a reasonable expectation or should I put things in motion sooner, and Dr. K says he thinks it’s reasonable and he’ll work with my treatment to help it happen. It still doesn’t mean I am getting some delicious rejuvenating blood. He says we’ll wait another month and see how the chemo pills have worked, and then I get to have another thrilling CT scan and then we’ll talk about what’s next. My next appointment is February 1st. It’s almost like the pufferfish will be pelvic groundhog, letting us know if there will be six more weeks of bleeding. It’s not even like a period, it’s so random and weird. There’ll be hours of nothing and then it’s like the tide’s coming in. He asks how many pads a day…I guess at 4, but then when I get home, I realize it’s more like 6. Oh wait, I forgot to do my “THIS IS GROSS” warning. Oh well, suck it up ponies. Anyway, we chat and he says we should probably do an exam, considering there’s a hole in my vagina that spewing internal muck and we should make sure it’s not become a disaster area. I agree as much as I hate the probing. I really do. If you ever get cancer, which I sincerely hope you don’t, wish that it’s in your toes or left pinkie, or ear. This internal examination nonsense never becomes an enjoyable part of the visit. I know that some guys think that we ladies enjoy having things in our vaginas, no matter what that might be, but no. We don’t. Especially not while at the gyno. After we have agreed, he and Anne leave so I can get undressed.

I do what I need to, and notice there has been no bleeding since I took a shower at like 10am. Odd. I hop up on the table (when will a woman doctor design a more exam friendly table? There’s nothing remotely comfortable or relaxing about it.) At least, there are no inspirational quotations on posters that you can stare at while being probed. However, if anyone at the PSH Cancer Institute powers that be are reading this, a small TV screen featuring the food network, or the ID channel, or even South Park would be far more effective in distracting me. I sit there on the edge of the table, swinging my seriously unshaven legs back and forth, when – well, hello there tidal wave of blood. At least Dr. K can now see what I am talking about. Gross. I keep waiting. I hear Dr. K on a phone somewhere and then hear him in another exam room. It seems likes it’s been a really long time that I’ve been waiting. Did he forget me? Time is always a little skewed when you are fueled by a brownie, and I am sorta ready for a nap. I don’t want to lie down, because that’s just weird, but I am nodding off. Finally, after what seems like 2 hours (it was 20 minutes) Anne comes back and asks if Dr. K came back. I say nope, so we both sit and wait and chat .Finally, Dr. K returns and we get to the business of ramming instruments of torture into my vaginal cavity. He confirms that there is still a hole in the vagina, but again, comments that this could be a positive thing, and, once again is pleased that I do not try to leap off the table in pain while he does his exam. As long as there’s no pain, that’s a good sign. He says that fistula word again, I shush him. He says that there any odor is probably just because it’s old blood. Double gross. But I’ll take it because anything is better than tentacles and pain. If I have to start wearing Depends to deal with this, I’ll take it, because ANYTHING is better than dragging a catheter around all day and having it cause you even more pain. I don’t think Dr. K or anyone can fathom what it felt like to have that fucking tube jammed in my bladder and constantly abraded by the movement of the cyst. Anyway, we wrap up the exam, I get another prescription for oxy, and sent on my way. It’s 4:10pm.

I gave a brief thought to getting Indian food for dinner, but that would mean exiting the warm car to fetch it. Nope, it’s 20 degrees. I’m not getting out of the car until I am home. As I am exiting, I see Alice, the sweet grandma, and she has still not been called back. I give her a fist bump and tell her I hope they call her soon. I was smart and used free valet parking today, even though I always tip, and stand inside while some poor soul freezes getting my car. I hop in, pleased to find that the root beer I purchased earlier is still delightfully cold. Dinner will be Arby’s. It’s on the way home and no need to exit the car. I’m exhausted. I just want medication and sleep but I still gotta pick up the faux beef sandwiches. Finally, I made it home, and the comfort of my couch. And that’s mostly where I am, except when I am in bed, or at work, or out.

Dr. K is always surprised that I continue to try and work. He said he’d be happy to say I can’t but I tell him I need those couple hours of socialization. He’s fine with that if it’s what I want. I was a little concerned that he didn’t want a CT scan right now, but then I realized, what’s the rush? If the cancer is disappearing through the hole in my vagina, that’s a good thing; if things are status quo, we already know that; and if things have gotten worse, there’s not gonna be a lot to do about it, and the knowledge isn’t going to make me feel any better. So I can wait a month. Bad news is that the scan is on the 27th, and the appointment is on the 1st. Five days of knowing what they find, without being able to see the doctor until Monday. I supposed I should be used to that though.

Well that’s all for now people. I am going to work this afternoon from 2:30 to 4:30 if Andy ever returns home with the car, since, of course, I have work and he decided that he needed to get an oil change NOW and oh, by the way, the check engine light is on and he thinks it’s the O2 sensor. That was two hours ago. So I’m gonna grab a little nappy nap and wait. Have a good weekend, and week, and life, and such. Peace!

Update: I was sitting here thinking how pretty sweet my life has been lately, no drama, bills paid, plenty of oil, etc. Then in walks Andy. There’s a cracked tire rod, blah, blah, blah and it’s going to take at least $1000 to fix what they know is wrong, and that’s not including what is the source of the engine light being on.  Car = undriveable. Fucking yay. Well, I’m not dead. That’s a plus. And we didn’t die in a fiery crash when the tire fell off, so that’s good too, I suppose.

Advertisements